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Blind Wife Wednesday: iPhone, You Phone, No Phone

Blind Wife Wednesday

Over the weekend, for whatever reason, my phone’s speaker decides to die.  Keeping in mind that my hearing is the sense I depend the most on, you can probably imagine how upsetting this is.  On the bright side, my speakerphone worked and I could use traditional or Bluetooth headphones, not exactly perfect, but the last 22 years of my life has been about adaptation so I can deal.

And deal I did, until Monday morning when my husband (who works for a wireless company) took my phone to work with him to get it fixed.  As he is running late, I freak out about my texts and calls.  Now, it would be bad enough to miss my MOPS (Moms of Preschoolers) notifications or texts from my best friends, or my mom, which break up the monotony and lift my mood.  I could also miss important calls or text from clients!!!  I run a business from my cell phone.

Thankfully, my husband is a genius and knows exactly what to do.  He switched our SIM cards!  Not only did this help me to feel less stress over the loss of my phone for the day, but it also helped me stay in line with HIPPA, as my business is a mental health counseling practice.

Then my AMAZING husband thought about it and went the extra step and made sure that I could zoom in with his phone.  Things husbands of blind wives must think about, sigh.  I appreciate this SO much because it took him only seconds.  It would have taken me at least 5 minutes and I would have had to juggle the baby at the same time!  I love you, my wonderful husband.

~Lindsay Gomez

Blind Mommy Monday: Adventures in Netflix

Blind MommyMonday

As a visually impaired mommy, finding shows on Netflix can be difficult.  I usually try to put on a VeggieTales or Magic School Bus episode.  The only problem is, I only put on the TV when my son is clinging and sitting on my lap and I cannot see the menu from the couch (actually to see the menu at all I have to be standing about a foot away from the TV).  Because of this, it can be very hard to choose.  As a result, we have been witness to a wide variety of cartoons, and as a mom this is quite distressing because not all cartoons can be endured by an adult!

I know this probably doesn’t sound like a hardship, but in our Netflix driven society, well you know.  But yesterday, I had a victory!  I played Netflix roulette and won a Magic School Bus episode!  Score 1 team mommy.

~Lindsay Gomez

Blind Wife Wednesday

Blind Wife Wednesday

These are just some musings about unique situations my husband and I find ourselves in because of my vision.  Some are funny, some are weird, and some are sad, but they all make our marriage what it is.  This is the first one, so I’m going to go with what we consider funny.

So, when we were engaged, my husband was working in a restaurant.  He was discussing our wedding and my vision came up.  Like most people, she was surprised and asked him many questions.  At the end of the conversation, she looked at him, and in the sincerest way imaginable said, “You are such a good person!  God is going to bless you for marrying her.”  He didn’t know what to say, so he just thanked her and went about working.

Later that night, he told me and we both just burst out laughing.  Now, you should probably understand that we are both Christians and believe in God—we even met in church!  So, it wasn’t the fact that she thought my husband would be blessed or that for getting married he would be blessed.  But, it felt like she thought he was marrying me for charity.  We really don’t think she was trying to be negative in any way towards us or our relationship.  It’s just an awkward comment.

Right now, I am smiling just thinking about it.  It has been a few years, but we still bring it up from time to time.  Like when my husband must do a chore because I cannot due to my vision I’ll say sarcastically, “Feeling really blessed now aren’t you?!?!”  And he usually turns to me and sweetly says, “I am blessed to be married to you every day my love.”  I know, sickeningly sweet, but I love it.

~Lindsay

 

Blind Mommy Monday

Blind MommyMonday

 

So, being a mom no matter what is difficult and I would never try to compare my struggles being a mom with ANYONE.  I just want to provide insight into what it is like being a mom with a vision problem.  And I know that every visually impaired mom is different, so just my disclaimer.

I have a 13-month old little boy and he is a little ball of energy.  He isn’t walking quiet yet, but my husband and I are convinced that he could probably climb to our roof if there were enough toys he could stack up.  And he tries to turn everything into a musical instrument.  Just to give you a little background and get a mom brag in!

There are many things I am learning about my vision now that I am a mom.  And I know from hanging out with other moms, that there are things I deal with that they don’t have to, but honestly there are much more similarities then I thought there would be.  Like, I was worried that because I can’t see everything on the floor, my son would get things in his mouth I couldn’t see.  Come to find out, that is a common worry among all moms.  And my son is now used to me taking things out of his hands and then giving them back because 9 times out of 10, it’s safe for him.  He also knows that if mommy is sticking her finger in his mouth, staying calm makes it go faster and she will either find nothing or something that is okay to be in his mouth—I think twice it was something that could hurt him.

It just goes to show that people are more similar than they are different.  And since this is mommy Monday, I will use a quote from my son’s favorite TV show, Daniel Tiger’s Neighborhood “In some ways we are different, but in so many ways we are the same.

~Lindsay

Birthday Musings

BirthdayMusings

Today is my 32nd birthday!!!  It is interesting how my birthday has become a marker for remembering my life with Stargardt’s disease.  I’ve had 22 birthdays since starting to lose my vision, and 21 since my diagnosis.  My 21 and 22nd birthdays were markers of half of my life living with the disease, unknowingly and knowingly respectively.  Those were difficult.

But, my hardest birthday was my 16th.  Turning 16 is important in our culture, for one reason and one reason only, the driver’s license!  Now, I personally had been looking forward to my Sweet Sixteen since I was 8 and my dad told me we were going to get a ’67 Mustang convertible and rebuild it for my first car.  Sounds awesome, right?  Well, that dream was dashed on a December day in 1996 when the diagnosis came in and I was told I would never drive.  The dread of my 16th birthday started that day.

The real panic set in when I turned 15.  By this time, I had come to accept my diagnosis, for real and we were seven months away from two of my best friends’ 16th birthdays.  Since it was summer, I did get some of a reprieve, but when August came around car talk was full force.  Not that I wasn’t happy for them, because I was, but it was a constant reminder of my loss.  Every lunch break we were in the library with newspaper ads and Auto Trader books figuring out the perfect car.  And I knew what the perfect car was, and I would never get it

Well, January came around and one girl got a Mustang—no not a cool vintage one, but it was great all the same—and the other a Honda hatchback.  So, we survived the car purchases, and 5 months to go ‘til my day.  And then it came, and guess what my mom had planned for our family to do?  We were to go to an eighth-grade graduation party.  So, I really liked the girl who the party was for.  Our families had been friends for years and I wanted to celebrate with her, but not on my dreaded birthday. I wanted to be alone in my room listening to depressing music and feeling sorry for myself.  Couldn’t we send a card and hang out the next day?  Well, no, I had to go.

So, in my sour mood, we went.   And low and behold, it was a surprise party for ME!  Family, friends, pizza, and cake.  There was even a DJ and hula-hoops.  I don’t know why the hula-hoops, but they were fun!  Did I forget about the car, no.  Do I still want to drive, yes.  But I did realize that I was loved for who I was and that my family and friends really understood how bad this day was going to be for me and that I needed a distraction.  Not every story ends like this, but I’m glad this one did!

And I just realized that my 16th birthday was half my life ago—full circle.

~Lindsay Gomez